Our friend, Amy Lozano, (Amy ON-oh as Heath says) made Dylan a weighted blanket that hopefully will help him. It is a blanket that has weighted pellets inside that makes the blanket weigh 7-9 pounds. As with his pressure vest, it is supposed to help with making him feel secure and grounded. Anyway, he doesn't really like it so we are trying to get him used to it. Every time it touches him, he pushes it away. So, today during his therapy appointment his therapist tried laying it down and having a "picnic" on it. Heath had brought down some play food from the play kitchen. Heath, Hanna and Dylan's therapist, Amy, sat right down and Heath started serving everyone. Dylan sat and Amy tried to put the edge of the blanket on his foot and he kicked it off.
So, the kids were having a picnic when Heath said, "Wait! Don't eat! We have to pray!" I was unsure of Amy's religious affiliation but she wasn't getting out of Heath's demand! I said, "Oh... ok, we forgot to pray. Heath, go ahead." And then he said, "No, I want Dylan's doctor to pray!" (FYI - We call the Occupational Therapist Amy - "Dylan's doctor" because we have 2 Aunt Amy's and 2 friend Amy's PLUS Dylan's therapist so it's easier for the kids to just say "Dylan's Doctor Amy") Anyway, she said a little prayer and Heath was satisfied to let everyone eat their plastic food!
I wanted to also update you on Dylan. I feel like he has regressed a little the past week or two. He was doing SO great but has starting to slip a little more back into the whining, crying, wanting to be held all the time, not wanting me out of his sight, etc. So, after talking with Amy today, she is going to do his next visit at our preschool to see if she can offer helpful hints to his teacher. Then the next week she is going to bring a Behavior Specialist with her to give feedback in that area. And she is also going to have the Speech Therapist come back and do another assessment on Dylan. Alot has happened in our family lately that I know has gotten him shaken up a little. Our routines are different now that Matt is home to stay, Chandler is in school everyday and we are going to preschool twice a week! That's alot of change in one month!
So, if you want to pray for us, please pray for Dylan to get back on the track of improvement and Chandler as he is very homesick for me (separation anxiety) since he only sees me for a few hours each night. He tells me every night, "I want to spend alone time with you." "I wish I could hold you all night." He is not used to not having me around 100% of the time. I've always worked where he's gone to preschool and he's always been with me. He does fine at school (not crying at drop off or during the day) but when he gets tired after dinner, he just gets clingy and says these things that break my heart!
No comments:
Post a Comment